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Viewing entries tagged
Chiari I Malformation
“It doesn’t help me if you hide your feelings.”
“I’m not hiding them, I just don’t know how to verbalize them.”
“I get that. I do. But you can’t just not talk about these things. It will eat you up inside.”
“Maybe. But I’m not nearly as scared for Isaac as you are right now. I don’t see surgery as elective. If he needs surgery at some point we will deal with it, but otherwise, for me, worrying while waiting isn’t going to help him.”
Within a week of getting the vitamin-D, Isaac’s speech had improved so dramatically that his speech therapist almost cried! I can’t begin to express the joy our family experienced celebrating this turning point with Isaac. He has worked so hard to get to this point, and although we still have a ways to go, we can see the end result approaching, and more importantly, he can too and it is motivating him to try even harder. These past few weeks are a testament to the long hours Heather spent doing speech homework with Isaac. Despite that, at our neuro’s suggestion, we still kept our appointment for the MRI.
