June 26, 2013
It took me awhile to even start writing this post, because when it comes to Yon, things are always so much more complicated. Being a parent to a child like Yon brings with it so many difficulties that you can't imagine beforehand. It starts with the most banal question of all, what to call his condition? Is he a disabled child? a special-needs child? a Special child?
The outreach advisor that met us on Thursday called him an Invisible child.
She meant to say that because his disability isn't showing in anyway apart form wearing glasses and a hat, that people forget about it and his special needs aren't met.
And just like that, she made my beautiful child into disabled, with special needs and invisible.
We call him Special.
Being the parent of a Special child you have to be constantly prepared for the little twinges in your heart that comes unexpectedly and randomly when you are walking on the street and see something interesting and he doesn't see it, or when there is a discussion about travelling with kids and you suddenly realise you can't give any tips about playing games that involves looking outside, or when you have to give him the iPad because somebody made the letters too small for him when using that app on the iPhone.
Read the full story at Orli D's Blogspot